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TAKE ACTION
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Click on Write Your Legislators below to prepare Letters and E-mails to your Legislators. You will input your name and address, preview and personalize the message, and the rest will be done for you.
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Support HR 4132, the FAST Act for Lifesaving Treatments for Rare Diseases
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Improving the FDA's Regulatory Process for Rare Diseases
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Support the Medical Foods Equity Act - S311/HR1311
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Support HR 2671 for Undiagnosed Diseases Research and Collaboration
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Support the Creating Hope Act S.606/H.R.3059
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S. 606/HR 3059, the Creating Hope Act to bring life-saving medicines to children
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Ask your Congress Member to Join the Rare Disease Caucus
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Key Votes
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- Supported our Position

- Opposed our Position
--- No Vote Preference
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Find Your Elected Officials
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To view information on your representatives, enter your zip code.
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Web Sticker Gallery
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Support our cause by adding a Web Sticker to your site. The left column includes a preview of each web sticker. The right column includes the corresponding code for each web sticker. Copy & paste the code into your site.
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